Contact and Resources

Have any questions?

Looking for other resources, hoping to collaborate, or want to share your story? Feel free to send an email.

Go back

Your message has been sent

Warning
Warning
Warning
Warning
Warning.

Other Resources

These resources include information on medical research, advocacy, and patient support.

Prof. Dr. Thomas Scholbach: Germany-based, one of the leading physicians treating and researching vascular compression syndromes. Discusses other vascular compression syndromes not mentioned here as well.

SMA Syndrome Research and Awareness

National MALS Foundation

Nutcracker Syndrome Association

AVCS Conversation with Dr. Kurtis Kim, MD FSVS FACS RPVI (Facebook group): Led by a US-based expert who discusses abdominal vascular compression syndromes with patients.

MALS Pals (Facebook group): The four abdominal vascular compression syndromes get discussed.

The Happy Pelvis: A peer health navigator providing resources for chronic pelvic pain, endometriosis, interstitial cystitis, and more.

Hips and Pelvis Advocate: Resource page for multi-symptom patients with vulvar pain, EDS, and more.